Feb 27, 2008

More Appointments...

We had our appointment with Cole's neurosurgeon today. We went over the MRIthat was done a few weeks ago. His ventricles have increased and the base of his skill has narrowed (both which aren't good news). Forgive me if I don't explain this all exactly correct. It is a lot of information to take in and sometimes I forget the correct terminology. We have a sleep study scheduled for tomorrow. We check in at 7:30pm and have to stay all night. They are going to monitor Cole's oxygen levels while he sleeps. If he does have sleep apnea they will determine if it is obstructed or central. If he has obstructed apnea then that relates back to tonsils and adenoids. If it is central apnea then that can be caused by all of his head issues. I hope everything is just fine in the sleep department. We aren't having anything that concerns us when Cole sleeps, so keep your fingers crossed! The doctor is also going to schedule an appointment with an eye doctor to check out his eyes. He wants to make sure there isn't any pressure behind his eyes. These are some things that will tell us some more information about Cole's head that the MRI can't tell us. His soft spot on his head is bulging more than before so there is some concern there. So, basically we are at a standstill right now. In 6 months, Cole will go in for another MRI to check how things have progressed. The doctor doesn't want to just jump in and operate because it is something that can self correct over time, but if it gets bad then he can do the surgery. Since Cole is a very happy baby that doesn't show any signs of pain or discomfort that is reassuring that he isn't feeling any negative effects. The doctor thought Cole looked great. Cole definitely charmed the entire office with his wonderful personality!! He was cooing away and impressing everyone with all the neat things he can do with his tongue. Oh, and we can't forget about him showing off how he can reach his toes and almost get them in his mouth. What a little ham!!

8 sweet comments:

How Life is Measured said...

Katie,
Owen went through a sleep study at about Coles age and was fine (as I'm sure Cole will do great! Can you believe all the medical stuff that's been thrown at you? I have Achondroplasia, kyphosis and hydrocephelous(sp?) down and am desperately trying to work on the other stuff. Good luck to you! I'll be checking for the results. Make sure to take your camera. I didn't take mine and would have loved pics of Owen with all the wires (he looked adorably miserable!).

Tricia said...

Hi Katie -
I am glad to hear you are finally getting some answers and attention from the docs after all the waiting you had to do. I wish you all the best as you go through the sleep study.
Tricia

The Bjorks said...

Im keeping my fingers crossed that everything goes well! Im glad the Doctors are finally able to give you some answers! Im sure Cole will do great during the sleep study :) Your pictures from your guys' trip home are too cute!!!

Anonymous said...

I will keep you and your family in my prayers and pray that everything works out for all of you!!!
xoxo
Lucia

Anonymous said...

Katie,
I am hoping all goes well tomorrow. I know it is alarming when you hear things like shunt or decompression-but let's not jump into that since the doctors are just taking precautions. As long as Cole continues to be that happy go lucky man that is all that counts!
Love Kim (and Preston)

Lisa said...

I hope the sleep study goes well. Our first one (when Liz was about that age) was the better of the three, but it makes for a l-o-n-g night.
Hang in there!
Lisa

The Bradley Fam said...

Hey, Loves! We will be praying for you during the sleep study.

"When you pass through the waters, I will be with you;
And through the rivers, they shall not overflow you. When you walk through the fire, you shall not be burned, nor shall the flame scorch you."
--Isaiah 43:2
Love, Jenny and Anna Claire

Tonya said...

I am late...it is a lot to take you, you'll be a pro in no time!